Fasting is said to be another fantastic health-enhancing thing. It is praised by healthy people, but this approach is also often used by people with various neurodegenerative diseases, including ataxians. Basically, there are several ways to do fasting. You can starve once a week and you can make eating windows in which you eat and a lot of time during the day is spent on not eating. I am not currently fasting, because I have an impression that there are many new things in my life and I don’t want to do everything at once. Fasting also has its own
Do you know it was Ataxia Awareness Day a few days ago?I asked my friends to ask me about ataxia 🙂 And here you can see all my answers! Remember that these are my answers and that I have SCA1 and I have no idea how your ataxia looks like. That is why I can’t tell anything for sure. What is ataxia? Ataxia is a neurodegenerative and hereditary illness. I have no influence on it, I inherit it and it is. It’s encoded in my genes. This is not one bad gene, but a bad effect. We all have this
Nobody will say it out loud yet, because there are still many unknowns, so I will say it. Hey, there MIGHT be a cure! I guess. It seems that yes, there is. I am not going to convince you of the correctness of my suspicions, but I will share the information I have gained. I am talking about gene therapy based on the action of antisense oligonucleotides, which are probably effective in reducing the harmful activity of excess proteins that are produced by ataxia. Ok, that may sound complicated so I hope this graphic will help you understand: Unfortunately, I
Since we learned about vaccines, many of us have wondered how vaccines can be affected by ataxia. I suspected that it probably doesn’t have any effect, but I preferred to check with the doctor. If you are still wondering about it, here I am with some helpful tips. Recently, the NAF published a webinar in which several vaccine specialists talked to each other. I will link this webinar below and if you have a free hour, you can listen to it. If not, I will try to briefly present the most important issues. In the beginning, Boris Juelg described the
Hello! ^^ On March 10-13, an online conference on ataxia will be held, organized by NAF. I am delighted with this solution – so far the possibility of taking part in this event was unattainable for me. But now? I am already signed up and I am going to comfortably watch the lectures from my home in Poland and I will be happy to share my thoughts with you. NAF organizes its events in a wonderful way – even previous conferences were available to watch online. Not entirely, but the most important speeches were. I remember watching one of the
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