Can I have hope? Ataxia Notes #5

I recently wrote a post about the potential treatment of ataxia (link), and however exciting the concept seems, let’s talk about what this news actually means to us. I remember the first time I talked about it with a psychiatrist. And after listening to my revelations that they must be testing something on mice, and it seems it works, she told me „be careful with this hope.” So according to her, I can be happy, but only moderately. After a while, I realized that I can’t be like this. I can’t be moderately happy. For me, something has to be

ASO – Potential ataxia treatment?

Nobody will say it out loud yet, because there are still many unknowns, so I will say it. Hey, there MIGHT be a cure! I guess. It seems that yes, there is. I am not going to convince you of the correctness of my suspicions, but I will share the information I have gained. I am talking about gene therapy based on the action of antisense oligonucleotides, which are probably effective in reducing the harmful activity of excess proteins that are produced by ataxia. Ok, that may sound complicated so I hope this graphic will help you understand: Unfortunately, I

Let’s talk about mental health. Ataxia Notes #4

I have mentioned it many times, but I can write about it again – I suffer from the anxiety-depressive disorder, and I am treated with therapy and pharmacology. I have the impression that my ataxia is inextricably linked with mental difficulties. I have had an anxiety personality for a long time, but it was the ataxia diagnosis that suddenly brought depression and anxiety into my life. I have the impression that even if we think that we are somehow coping with the ataxia diagnosis, therapy is obligatory. It is impossible to pretend that it is ok. The ataxia diagnosis is

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